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24/12/2013 at 13:30
B has to drink 1400mls of water a day we have been told. Since this morning he has drunk about 150mls and that is with me nagging him! When he goes back to school he will have to be in the routine of drinking that every day. It has to be plain water aswell.
24/12/2013 at 13:43
Hmm I was going to say add diluting juice but sounds like that's not an option. Have races with him to see who can drink it fastest?
24/12/2013 at 13:54
funny straws or a special cup ? something to make it more fun ?
a sticker chart?
24/12/2013 at 13:55
Use a bendy or fancy straw? A favourite cup? A treat when he gets to halfway and then again at the bottom of a sports sippy bottle thing?
24/12/2013 at 15:07
When he goes back to school I will have to send him with a specially marked bottle to show him what he has to drink by when and so I can record how much he has drunk each day. So we are practicing at the moment with me saying have a drink every ten minutes. He is up to 300ml now, so it has def improved throughout the afternoon. I might do a hcart where he gets somethign when he reaches a certain amount.
He kicked off big style to begin with refusing to drink because he thought he had to drink it all in one go
24/12/2013 at 15:42
we have to get Luke to drink by routine because he doesn't recognise thirst. We have had to make it an expectation and go by the clock, a bit like taking medicine. So It's breakfast time and this your drink, snack time (10am), lunch time, afternoon 4pm, tea time etc.
maybe breaking it up in small doses rather than one big water bottle might make it seem more manageable? will school support him and remind him? hope it's written in his care plan...
24/12/2013 at 17:43
This may be B's problem - that he doesn't recognise when he is thirsty on top of everything else I have been told to get him to drink 140mls an hour and to spread it out during the day. I am going to mark his bottle up so that it says 8am, 9am, 10am etc to show what he ahs to drink by when. To begin with at the moment it is getting him to drink full stop. I have harrassed him all day and he has done 650ml Which I am over the moon with because that it is a massive improvement upon yesterday. I am not sure that B ahs a care plan as such in place at school but his teacher is spot on, he googles everything he can about B's condition and soemtimes he seems to know more than me! As soon as I have an update I update him and emt with him on 19th December but said I would type it all up for him rather than expecting him to remember it all.
I was thinking in an ideal world I would get him a watch that goes off every ten minutes to remind him to drink!
Hopefully by the time B is back at school in Jan he will have got used to drinking.
I know B's issues are nothing in comaprison to Luke's but it is lovely to be able to chat with you as you often have fab ideas
24/12/2013 at 19:21
I just thought if it's a smaller amount in a cup where he can see the bottom it won't be so overwhelming. Luke likes a straw and the bit where he slurps it till it makes a noise and cackles that all the water is gone. You could keep your large measured bottle with the fluid he needs for the day, but ask the teacher (or you at home) to pour a measure into the cup at regular intervals with the expectation that he drinks before moving onto an activity.
*****disclaimer* I make stuff up as we go along. we've just had a horrendous evening trying to get Luke to make progress with his toileting and despite the warning that FC might not be able to deliver one of his gifts (that was linked to a target) he still wouldn't do it.****
24/12/2013 at 19:53
Well originally I said to the woman we saw that he happily drinks from a water fountain and she told me no chidlren only drink a very small quantity from a water fountain. We have made fabulous progress today as at last count he had done 750mls so we are half way there! U was showing off as she happily drinks loads but then wet herself three times because she drank probably four times the amount eh did
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