Sorry in the delay responding I've had some medical issues this week x
I'm really sorry I didn't see this before your interview I hope it went well. It sounds as though you've just about made your mind up, good for you. It's easy to say and harder to do but if H does die more suddenly than you thought you can't beat yourself up about having taken on the course. You have to allow yourself some you time doing something you enjoy or you'll burn out. I have worked in professions alongside carers and if you don't have some space then you'll get yourself into a position where it will effect your ability to cope, which you are obviously doing brilliantly at the minute. So sometimes it's about being there a little less in order to improve things in the long term.
As for the personalised care plan you need to have a chat with H before you fill it in. If you're worried about how it may effect him seeing you put down in words that caring has an impact on you, you can always use the excuse that is you don't 'confess' to issues they will say you're coping fine. All Social Workers agree it's stupid the way the questions are worded but as it stands if you say that doing everything yourself is fine, the system will say you don't need any help. The PCP can be really useful for your H to get a bit of time to himself too. He can use a carer (which can be a friend/relative etc..) to go swimming, to the pub whatever he fancies. I think sometimes you can think of carers as being there to do tasks like washing the person, but actually it can be about doing things young people do. I think I mentioned it last time but the funding is based upon income, however wages and child benefits and most of PIP is disregarded so you'd probably get a full award.
I'm sorry you didn't get the enhanced PIP mobility rate they have altered the criteria in the switch from DLA to PIP which meas if he can walk 25 metres with or without an aid he'll only be entitled to the standard rate. Certain charities have been up in arms as 25 metres is nothing and it's left a lot of people housebound, but it's an obvious cost cutting exercise,
On a final point if when you move or have changes made, you can have your council tax reduced by a band. There are some weird rules I think it's either your H has to be in a wheelchair in the house or a room has had to be converted in purpose to meet your H's need i.e a bedroom turned into a wetroom etc.. It may be worth a look at some stage.
In the meantime, good luck with your course application and the results of your job interview. Keep me posted
Have a lovely Christmas xxx