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It's been a whole year

Chat < General Chat, Products & Comps < General chat

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  • catarinamumdrum
    catarinamumdrum

    19/05/2013 at 11:34

    PM

    And we are feeling very lucky.  This was the early hours of that Sunday morning as the second load of blood was beginning to make a massive difference.

    And here she is last night on our way out to a family party.  What a difference a year, some fab doctors, a couple of doses of super blood and a lot of meds have made!

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  • Margotmumdrum
    Margotmumdrum

    19/05/2013 at 11:40

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    I can't see your second picture but I'm so pleased to hear such a positive update - well done you and well done S for keeping going during a tough year! x

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  • catarinamumdrum
    catarinamumdrum

    19/05/2013 at 11:43

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    Thanks Margot, I've just edited it, so second pic should be coming up now!

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  • Margotmumdrum
    Margotmumdrum

    19/05/2013 at 11:50

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    Can see it now - what a gorgeous and very healthy little girl you have!

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  • QueenIgraine
    QueenIgraine

    19/05/2013 at 11:55

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    It's amazing isn't itHug

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  • Figaro
    Figaro

    19/05/2013 at 12:09

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    Your daughter is so beautiful!

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  • Anonymousmumdrum
    Anonymousmumdrum

    19/05/2013 at 12:29

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    Beautiful girl x

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  • SnowWhitemumdrum
    SnowWhitemumdrum

    19/05/2013 at 13:12

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    Wow, I can't believe it has been a whole year.  She is beautiful x

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  • AlsiT
    AlsiT

    19/05/2013 at 13:15

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    Beautiful girl and great that she is doing so well x

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  • LittleMadam
    LittleMadam

    19/05/2013 at 13:15

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    Aw she's adorable.

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  • raincloud
    raincloud

    19/05/2013 at 17:29

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    She is a cutie.

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  • michy-lou
    michy-lou

    19/05/2013 at 18:58

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    Thats flown by. She's lovely and its great to see how well she is doing xx

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  • heartnurse
    heartnurse

    19/05/2013 at 20:59

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    What fabulous news and a gorgeous second photo xxx

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  • catarinamumdrum
    catarinamumdrum

    19/05/2013 at 21:24

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    Thank you everyone, as the weather has improved, it seems S has as well, she's been so bubbly and full of energy all the time recently!

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  • WhiteSparkles
    WhiteSparkles

    20/05/2013 at 03:47

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    She's a pretty girl! So pleased for you all, I hope she continues to grow stronger. That year seems to have gone by so quickly too xx

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  • Frankiemumdrum
    Frankiemumdrum

    20/05/2013 at 07:15

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    This has brought me to tears! Struck a chord as I have a similar photo of my youngest at the beginning of this year (17 months old at that time). She's now bouncing around happy and better in herself (still going through investigations to find out what's wrong)  Anyway, what a beautiful daughter you have and she looks so happy and full of life in the 2nd photo. You must be so proud :-)

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  • Lindtbunny
    Lindtbunny

    20/05/2013 at 07:26

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    Catarina do you mind me asking what happened? I haven't been around long enough to know. She looks beautiful and healthy x

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  • Cedar
    Cedar

    20/05/2013 at 08:17

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    Lovely second picture. Can't believe that its been a whole year since she was so ill. Hope you all had a good time at the party.

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  • Ninabeanie
    Ninabeanie

    20/05/2013 at 08:53

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    Bless her she is sooo pretty and has come so far in a year x

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  • catarinamumdrum
    catarinamumdrum

    20/05/2013 at 13:44

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    Lindtbunny

    Catarina do you mind me asking what happened? I haven't been around long enough to know. She looks beautiful and healthy x

    She has a funny hereditary blood and immune system condition, but we didn't know.  Unfortunately she got slapped cheek, which unknown to us was the worst thing a child with that blood condition could get and not be treated or monitored. But we didn't know she had either the condition or the virus.  Because it isn't a very common condition, and because her reaction to what was happening was so severe, the doctors were quite baffled as well.  We had seen the GP numerous times, and when it all came to a head a year ago we had been told to go home and call up on the Monday for another blood test.  Luckily I followed my instincts and took her to A&E and then into Paed high dependency where it took them about 15 hours to work out what was wrong and then we had to wait for the blood transfusions to kick in (afterwards the consultant told us they weren't expecting her to accept the blood as it was likely her body would reject it, that it was really the last chance saloon), there was no medicine they could really give her at that point, and she was a couple of hours away from leaving us.  I'm quite glad neither me nor H truly realised the enormity of the situation  until the following day when they started having debriefs with us about what happened and what the plan was from then, and we still have lots of hospital involvement and probably will for years.

    It's been a stressful year, even a cold knocks her back for 6 weeks, her haemoglobin level readings are like a rollercoaster, and she has had 2 further (but not so serious and dealt with very quickly) aplastic crises and we get through oodles of antibiotics and other med, but now the winter has gone she seems brighter than she has for about 18 months, so long may that last! 

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