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13/03/2013 at 09:26
He's being tested for cystic fibrosis.... they have said its very unlikely but need to rule it out. They were pleased with him physically but he still has a shadow on his lungs. They think its just scarring but will review this in 3 months when we go back. If they aren't happy then. He'll be going for the operation to check his lungs. I'm really hoping he doesnt need this but at the same time just won't him to be ok and if that means having it then he needs it.
So just need to wait 6 weeks for tests for CF. He will be given flu jab once he turns two (the autumn) and will be prescribed antibiotics when I go to see GP to make sure it doesn't get worse.
Thanks for all the vibes for him. I'm hoping will know more soon but just wanted to update you all.
Not sure if I should have posted this in BT... x
13/03/2013 at 09:27
Hope that everything comes back clear xxxx
13/03/2013 at 09:32
Oh PJ, fingers crossed the test comes back clear x
13/03/2013 at 09:42
I hope it comes back clear x
13/03/2013 at 14:40
i hope the tests come back clear for you lovely x
13/03/2013 at 15:15
Was he not tested at birth? I thought they did that as standard now? I'm on a 6 week wait too for results Being really thick but what do they think has caused the scarring other than the possibility of CF?
13/03/2013 at 15:21
Sorry only just got back to this today!
OI - yes he had he heel *** test but they want to go over it again to make sure. The scarring is from the infection and the said 'the trauma it had on the lungs' as he was so young when he first got it. The fact that the infection may have been there still after he go well for 6 months and then came back when he got a cold. I been doing some research but not alot is making sense, so have stopped. I think I will wait for CF results and go from there.
Hope your results come back on. PJ xx
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