introduce ourselves.............

26/10/2006 at 22:36

hiya, im new to this site.

my names katie and im 21. im a single mum to jordan whos 5, and lily-mae who is almost 7 months old.

My son jordan is currently waiting to be seen by the hospital as he is suspected to have ADHD. he also has speech and hearing problems.

Lily-mae has severe acid reflux and is on a breathing monitor as she has stopped breathing a few times due to her inhaling her own vomit.

although they are both hard work, i love them both to bits and wouldnt chabge them for the world !

26/10/2006 at 23:08

hi im new to,
my name is vicky im 29 {old}
im mum to lewis 5 1/2
and ellis nearly 8 months
Ellis is a heart baby he has hypoplastic left heart syndrome, so far he has had 3 collapsed lung and mild kidney failure both have been corrected thankfully. He has been through 2 lots of open heart surgery one at 3 days old the second at 4 months, he is expected to have a third op between the age of 2 and 5 then a transplant in his teenage years
he is the most smiley happy baby ive known and as with both of my boys for all the heart ache it is easily pushed away by the laughter and joy they bring
take care vicky and boys x x

17/11/2006 at 14:56

You guys have it hard. I bet the hyperactive kid is difficult to deal with sometimes

17/11/2006 at 14:58

That picure of luckymummy that I justlinked to is beautiful. How so you do that link Is it under signiture

18/11/2006 at 22:51

hi teresa
thanks for saying that about my boys.
i added it under signature i just copy and pasted it from my photobucket account.
good luck i look forward to seeing your pics on here soon
vicky x x

07/12/2006 at 00:02

hiya, im new. I have a 6 month old baby. I found out when i was 20 weeks pregnant that his left hand was cubed up. He has all 4 fingers on that hand and a thum but he has no strenght in it.

It was hard to come to turns with but i knew i had to get on with it and give him the best i could. When he was born, i feel in love with him, his hand wasnt a problem. He will be going for surgrey at 18 months to straighten it but it will be shorter in length than his right hand.

It happens to alot of children but to the feet in most cases.

People do stare, that makes me angry because i want him to grow up being confiden With people starimg at if he is an alien, im scared that will make him grow up feeling insecure.

Has anyone come across another baby with the same condition as mine?

16/02/2007 at 22:36

firstly you are all so brave and i hope that you are all doing well.. hope your little ones are doing well im sure they will still lead happy lives and still be loved just as much.... good luck all xx

22/02/2007 at 13:49

hi my name is cindy. my eldest son Dillon is 5,he was refered to a pediatrician when he was nearley 2, he had no eye contact and would not respond to his name,he appeared to us he might of had hearing problems but all tests he past,he could here when he wanted to.Dillon also has speech and language difficulties,sensory problems,difficulties relating to the world around him and repetative obssesive behaviors and learning difficulties,i could go on and on but dispite that he is the most loveable,affectionate person.Autism or no autism i would not change him for the world we love him dearly.

rileysmum

29/03/2007 at 23:16

Hi all,ive just red all the messages and i agree,you are al mums in a million.i thaught riley was a handfull at 2yrs old with only asthma and hayfever,but you all got it hard but still manage,your all an inspration,i only wish there was more people able to be open and happy to talk about everyday problems they face,it helps us others to understand in someway what you face in life.Thanks for opening my eyes to the other side.Emma.xx

08/04/2007 at 00:33

Hi,
I have 3 children 7, 6 and 1yr.
I work with autistic children and those with challenging behaviour.
It was lovely to read the love u have for your son.
Keep going there will always be good and bad days, and on the bad ones there will be lots of good ones to look forward to.
Can i just suggest that u encourage him to be as independant as possible as he will be distressed less in later life. Good luck with all x

10/04/2007 at 12:01

We work very hard everyday to encourage dillon's independence, and who knows what dillon will be like as an adult we don't dwell on that,we take every day as it comes.Not every autistic person is the same,some autistic people can lead independent lives {high functioning autism aspergers]some we know can't.

simone

19/08/2007 at 09:44

Hi everyone my name is Simone and i am new too.
Just read all your messages and all your children sound lovely and you are all doing a wonderfull job.
I have a nine month old baby girl called Jessica and i think it is hard work when she is teething so i don't know how you all cope!
Hope to chat to some of you over time.

lena

27/10/2008 at 03:47

Hello all, like alot of you l am new to this. My name is Lena lm well over 21 (!!!) and l have seven beautiful children. They range between 25 - 3. Chloe has hearing problems Jack as ADHD and Samuel, well we have multi problems. They range from being deaf learning problems and although he turns 4 in January he still in nappies due to a bowl and kidney problem. He has hes problems bless him but hes a happy chappy and warms up a room with the beautiful smile he has!. I wouldnt change anything (ok maybe the gray hairs and flabby tummy!!), but my brood no way. Personaly l think us Mums do a brilliant job. Lets keep up the good work ladies. Thanks for letting me put my two peneth in keep up the good work ladies, take care out there. Lena xxxxx

Sandra Gibbs

16/05/2009 at 23:52

Hi, I'm Zoe, mum to James 3 and Amelia 1.

James has frontal lobe epilepsy. Diagnosed at 14mths. It's been really difficult as we have yet to find a drug or combination (he is on 4 at the mo) that controls the seizures. He has speech and language delay but nothing else detected. We have been warned that this type of epilepsy usually results in futher developmental problems. Being assessed shortly by Occupational Therapist and Physio.

Like you all say, even through the tough times-wouldn't change them for the world.

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