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22/07/2013 at 10:46
My E has had awful diarrhoea now for two weeks.
We've seen five doctors now and getting nowhere. She's definitely not dehydrated thank goodness and we've stopped all solids. But she jus having fits of screaming and thrashing and being completely inconsolable not to mention nappy after nappy of horrible slime!
We're getting about 20-25 nappies a day, she's taking 35oZ of milk still with poop starting from about 2 mins into a bottle and continues for 30 mins after. We've tried a day on just water and she howled with hunger plus a day on half milk, small portions, 5ml every 5 mins. Didn't help. She's had results/tests confirming its not an iinfection.
I've always said since she was newborn that she was lactose intolerant and at times more so than others. Initially colief helped to break down the lactose then aptimal comfort with 60% less lactose. She always then slept through the night from 12 weeks until weaning when she will wake up to 20 times in pain.
Doctor completely flatly refuses to acknowledge an issue and I'm back today to push for lactose free milk.
Anyone got any tips or info I should be passing on?
Really ddon't know what to do for her anymore and if no joy today I plan to go to A&E.
22/07/2013 at 10:51
Sorry I don't have advice, sounds absolutely awful. I'm pretty sure I have seen the lactose free milk on the shelf in boots in case you want to buy some and try it while you wait for the doctors to get their act together. Hope she is better soon.
22/07/2013 at 11:06
we had this with Isla when she was 10/11 months I think hers was brought on by a tummy bug but she never recovered and has been dairy free since, she is now 20 months. I didn't bother with the doctors as I know just how useless they can be I just took her off of her normal formula and started on cow and gate infasoy. She was completely back to normal after 12 hours. It was incredible. Before that for around 2/3 weeks she was exactly as you describe your LO. Runny nappies, really upset in herself 10-20 nappies a day, and the smell was very unpleasant. If you don't get on with the GP why don't you try Infasoy you can get it from boots. I really do have sympathy for you x
22/07/2013 at 11:15
We bought some SMA LF off the shelf last week and O is like a different baby. Dr was less than helpful and said he couldn't have a lactose intolerance as he would have the runs rather than the awful constipation he was suffering. It's been a week nearly and he is so much more settled. Buy a tub and you should notice a difference within 3 days if its lactose intolerance. If not, then try the milk that has the proteins removed as thats also an area where babies are intolerant. Good luck xx
22/07/2013 at 11:22
It sounds like she's got very similar symptoms to what my brother had when he was a baby and, after seeing numerous doctors, was eventually diagnosed with a milk allergy. He was put on soya milk and was a different baby.
My only advice is to stand your ground with the GPs - if you feel something isn't right, and have an idea as to what it could be, don't back down. My mum was made to feel like a neurotic mother with one GP suggesting she had a 'break' and they take my brother into hospital for a night. Needless to say she ran out of the surgery in tears and it took moving to a new surgery to get someone to listen to her.
Really hope you get some answers soon and E is better x
22/07/2013 at 11:30
Thanks ladies. I'll be on the hunt for the SMA LF and soya layer if no joy. I tried over the weekend in Milton Keynes and couldn't find any, would it be under the counter do you know? I'm determined one way or another we'll have some action.
WG gwe symptoms were of milk allergy as a little one with foul skin and screaming but she grew out of that, and we too had weeks of constipation before the diarrhoea first time round before we switched formula.
22/07/2013 at 13:13
Speak to the pharmacist at tesco, can't remember her name, black lady, foreign accent, she's really knowledgable. They sell sma lf behind the counter. Or Iv got the Aptamil pepti if you go down that route.
22/07/2013 at 14:31
Thanks missus. Just been to my HV in advance of doctor at 3 and she took one look at her nappy (wiped it with a wipe to see the texture, vile) and said it's quite nasty intolerance to either lactose or cows protein? ? Or was it cows milk? , she doesn't know how we've gone on this long! Argh I'm furious after weeks at the doctors telling them this! My poor baby. Been told try lactose first, got detailed food and nappy diary to fill in. Back on to the solids too from now.
Just going to get the chemist to order in some Aptimal lactose free.
22/07/2013 at 16:26
Her symptoms sound similar to S's. I didn't get anywhere with my HV and had to see 3 diff GPs before someone listened. We thought that she was lactose intolerant, but it turns out that she has a cow's milk protein intolerance. Since weaning it's also become apparent that she's soya intolerant too. She was prescribed nutramigen lupil 1 and then moved her onto number 2 at 6 months and she's thriving. If you don't get anywhere with the lactose free milk, ask to be prescribed the nutramigen as lactose and milk protein intolerance are caused by different things in the milk. As it's been going on so long, I'd suspect that it's a protein intolerance, as lactose intolerance is usually temporary following a tummy bug. Just be careful to not give her anything with milk in now you're weaning and check all labels carefully. There are plenty of substitutes available, but most of them contain soya unfortunately. I've found the Ella's kitchen pouches to be good, as very few of them contain added milk and it's made eating out manageable (I tried BLW, but the intolerance has made it so difficult when eating out). I hope you get something sorted for her soon. It took 3 months before we got anywhere with S.
22/07/2013 at 16:59
Sounds horrendous. It's probably worth trying something without lactose but I would really push for a referral to paeds as you'll get more help. If its cow milk protein allergy then she might also have problem with soy as they're a similar structure.
23/07/2013 at 07:12
Went in to see the doctor, who agreed with the Health visitor and prescribed SMA LF to try initially. I've to keep her on normal milk today and keep a diary to track any changes.
Woke up this morning to a nappy that'd leaked through the grobag. sheet and mattress - oh dear me!
23/07/2013 at 07:14
Missed you there LWO - I'll keep pushing until little lady is happy bless her, but yes the reality of how the diet of the whole family is about to change is quite scary, especially as we eat out a lot!
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