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27/07/2013 at 14:23
The more i look at P the more i think she has some kind of allergy but i cant pinpoint what it might be.
Every night we have this charade of her not wanting to go to sleep which could of course be totally normal. Its like she is hyper active. She lays in the crib and starts flailing her arms and legs about like she cant keep still. Then she starts moaning, really itching at her eyes,, then eventually crying. The only thing that then consoles her is for me to bf her. I know she isnt hungry as she will have had a full bf and a 3oz formula top up before bed. When i bf to settle her she is very snotty which could of course be from crying although she wont have cried much before i pick her up. I put her back in the crib asleep, she sleeps for 2 mins and then wakes again. Last night was awful and it went on till 4 am on and off.
During the day she often doesnt sleep for more than a total of 1 hour. She was so tired today but wouldnt give in so after a very short comfort bf i put her down in the big cot in the nursery and she kept startling herself awake. I watched her and videoed for the GP/HV but she is very snotty and she pauses breathing for quite a while, startles and wakes, rhen nods off and pauses breathing again and so it goes on and on. I am sure its because she sounds like she has a cold so much as she cant breathe through her nose. She eventually woke properly and i took her downstairs - she was happy and smiling but she had an itchy bump on her face like a bite. I took a photo and it was gone within an hour.
She is asleep now and is fine but the constant snot/snorting like a pig/itching at eyes and occasional itchy bumps on face all scream allergy to me but what to?
Dont think its soap powder as these itchy bumps only come up on her face. Hayfever would mean she is snotty and itchy outside more but she isnt. Dust allergy would be more constant.
She only does this mad face itching thing when i lie her down to sleep which made me think milk again as she only has formula before bed and sonetimes at lunch time but she hasnt had any yet today and this itchy bump came up after she had cat napped in the cot bed?? Its definitely worse after being in her crib or cotbed so what could it be????
Some days she cries nearly all day which i put down to reflux but now i wonder if she feels itchy or something. I am going to give her formula when she wakes to see if she gets snotty/itchy. See now she is sleeping soundly on the sofa with no snuffling or jerking awake which then makes me think it could be bedding related but then surely her clothes would affect her in the same way as its all washed in the same non bio liquid and surely her whole body would itch??
Arrrrgghhh - help!!! I am so fed up of having such a grumpy baby (although when she has a happy day she is so smiley so it cant be something that affects her all the time).
27/07/2013 at 15:00
I'm not sure, if you're concerned def see HV/GP. Congestion can be a symptom of milk allergy which if its happening after formula it could be that. Is her bedding clean? I'm not accusing you of being not doing washing but if there are traces of eg milk on it then that's why it could be affecting her skin.
My son has a milk allergy and was fine with my milk but can't have any dairy products.
27/07/2013 at 15:30
Yep everythings clean and she never normally sleeps in the cotbed so very unlikely there would be any milk traces.
I have just given her a bottle of formula and she is happy as larry, smiling and gurgling away so not looking like milk......
27/07/2013 at 15:45
MM is it worth writing yourself a food diary and seeing if it's something that you eat? When P was tiny she sounded a lot like E, but we've never had bumps on forehead just around the mouth when she's eaten something that has set her off. E is always congested though, and often snotty and chesty. We've just found e is lactose intolerant (finally, I've only been saying it 28 weeks) and a few people said lactose can be in their system from formula for up to two weeks.. so it could be lactose or milk. O hope you get answers soon.
27/07/2013 at 19:34
Thank you. Good point - will keep a food diary x
27/07/2013 at 20:22
As I've said before on your threads, she has all the symptoms of a milk intolerance. Get the GP to refer you to pead. And ask for intolerance/allergy testing. This has gone on too long now. Big hugs. X
27/07/2013 at 22:28
Exactly what LWO said
28/07/2013 at 07:35
Can I ask what exactly are the tests that can be done? No matter how much I ask I'm fobbed off with a "there aren't any tests" but currently on a food diary for E and you can see a huge difference in symptoms on new milk so it's fairly clear iyswim.
28/07/2013 at 10:42
Thanks everyone. I have seen 5 different doctors and 1 HV who all say they dont think its milk allergy but i am sure she is definitely allergic to something. Last night she had formula at 9 and took ages to go to sleep but wasnt snotty or itchy but then she had a top up at 5am and was thrashing around and rubbing her face and eyes for half an hour then slept soundly. She seems itchy sometimes but not others. The GPs' reasoning for it not being milk allergy is that she would be more ill i.e. poor weight gain, vomiting, diarrhoea (which she did have badly but its now stopped), crying after formula etc. I am going to keep a diary of what i eat and P's behaviour, take photos and videos and get yet another opinion. At what point though do you stop asking for second opinions when this will actually be the 7th opinion?! Am i imagining it?????
28/07/2013 at 11:43
You don't stop asking for opinions because you know her, they don't. You know something's not right. At the end of the day these are GENERAL practitioners, not specialists, which is who you need to be referred to
28/07/2013 at 16:34
I also saw 3 GPS and a HV who blamed BF for our problems and it was only after I did my own research and quoted it at one and insisted that she was referred, was she diagnosed. S didn't even have any tests in the end as the specialist said that she was so classically intolerant he didn't see the need to subject her to anything else. I think they can do skin *** tests which will show reactions to different foods if needed.
I'm being very blunt, but asking for advice on here isn't going to help your child, particularly when you're repeatedly given the same advice in return. As a mum, if you think something is wrong, there is a good chance that there is and you need to get pushy and demanding for the sake of your child, with people who could help her. Demand a referral and further tests , even If it's for peace of mind. Milk allergy symptoms are also different to milk intolerance and from what you're saying she seems to have the symptoms of an allergy and the drs are mentioning the symptoms of milk intolerance. However, not everyone will have all the symptoms of a condition as different people will react in different ways. Have you tried cutting dairy and if her diet and buying formula such as nutramigen to see how she goes? If the symptoms then clear up, then you'll now for sure. You could even ask to have some formula prescribed for a short period just to see if it does make a difference? Good luck. X
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