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13/12/2013 at 19:39
Sorry to keep harping on but I'm at a loss as to what to do and could really do with some advice.
We've definitely seen an improvement in A since starting the nutramigen besides the little blip where we had to stop her reflux meds. Her flatulance that was causing her pain stopped almost as soon as we started the milk and she's a lot more settled in herself during the day and is napping slightly better. When we stopped the renetadine and domperidome we found she started being sick again and was arching and going stiff when we tried to feed her. Again, this stopped when we started the meds again.
However, we still get 2-3 hours of screaming and being unsettled and unconsolable and I just don't know what to do. I know all babies have unsettled periods at night but this is more than that. My chest is covered in scratches and I'm surprised I haven't got bald patches from it being pulled. I'm as exhausted as she is by the time we go to bed, I can't eat if she's screaming as its too upsetting and has my stomach in knots - I can't even watch TV or have a conversation with my H has the screaming is that loud. Its breaking my heart to see her like this, that's she's 3 months old and I've still not been able to sort it for her.
For those that have tried it, do you think neocate will make a difference? Or can anyone say that different reflux meds made a difference? She's only just had the dosage updated so I know its not that. I feel like I'm losing hope and don't known what to try next. I can't believe the paediatrician discharged her - this is not normal, nor just a touch of colic. Where else can I turn?
Any advice/experience would be gladly appreciated x
13/12/2013 at 21:06
Which Nutramigen have you got? If its the one that contains the broken down milk protein (lipil?) then it may be that she's still not able to tolerate it and you could ask for Neocate instead which contains no milk protein at all. N was on this.
Why not ask for a referral to a paediatric allergy consultant? We see one and he's great. I'm sorry you're still going through this. The other option is to try omeprazole instead of ranitidine.
14/12/2013 at 07:10
She's on the AA milk which I've just read is similar to the neocate. If that's right it gives me even less options! I've just had a search on Google and there is a paediatric allergy team for my county but its about an hour away so will have to see of they would still refer us. Do you think I could be asked to be referred back to paediatrics but to see a different paediatrician?
14/12/2013 at 07:54
14/12/2013 at 08:16
JRJ, not at all. I'd actually had the same thought myself so for the past week I'vebeen really persevering in making sure she takes a nap around every hour and a half shed been awake. She only really manages half an hour at a time but at least she was getting little and often. It didn't really make a difference anyhow. To be honest, we're struggling to get her into a routine at night - the screaming usually starts around 5pm and lasts on and off till about half 8\9 (although the past couple of nights she hasn't settled until 11) Also, because she's still in with us we can't really take her upstairs while she's screaming in case she wakes her sister. Any ideas how I could get round this?
15/12/2013 at 07:28
The screaming sounds like Es colic did, because of the predictability of the timings. If it were after every bottle I'd probably link to allergy or as you lay her down I'd say to the reflux. It sounds like your poor love is struggling with all three :( we had simular in terms of Es reaction. She would head but and scratch from the sheer nature of her being hysterical. It was awful but it passed much quicker than the allergy symptoms did. About 12 weeks we turned a corner.
In terms of action, yes definitely push for further referrals. X
15/12/2013 at 07:36
Re the calming and screaming. I'd use a sling if you can. It normally helped E come back from hysterical baby to calm enough to sleep baby. A bath and skin to skin helped too otherwise a walk in the fresh air or drive in the car might help switch off the screams and settle into a calm mantra too if your h is around. Alternatively, would your older lo notice? My niece doesn't wake up to her sister screaming in the same room often. If so would calming background music for her room help? For us personally the screaming was so bad/loud that it wouldn't matter what room or floor of the house you were on it was clear as anything anyway. Otherwise would music help your LG? There is a toddler calm cd that mimics the heartbeat I've ordered to try and keep E calm in the car (as she gets very upset in there). So could be worth a try? X
16/12/2013 at 09:20
Thanks all! LM, A is 14 weeks now so shouldn't she be outgrowing colic if it were that? Its so confusing as they're all so similar so
Symptoms wise. Is it possible to have reflux and colic and a cows milk intolerance? We're back at the doctors this morning and i've got a video of A to show the doctor so she can see how bad it is. Without her reflux meds it was after every feed but since starting them again she's better during the day just not at night - I don't know why!
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