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28/09/2013 at 20:55
Sorry for yet another needy post but I really need some more of your great help and advice.
After a several days of having my little girl crying constantly, writhing in pain and generally not being very happy the doctors have decided she has colic. (they previously thought it was reflux but after prescribing gaviscon which did nothing but make her constipated and more uncomfortable they have settled on colic.) She always seem to have wind and not be able to get it up no matter what we try and I can feel it bubbling in her little tummy.
We have started her today on infacol and comfort milk but it doesn't seem to be having any effect yet. I know it's still early but I hate seeing her in pain and uncomfortable and hearing her cry and not being able to do anything.
Had anyone got any experience or words of advice they can offer please? I feel so helpless and useless, thank you x
28/09/2013 at 21:11
Have you tried a nice warm bath and tummy massage. We have a tummy tub and F always brings up wind when I am bathing him in it. Massage never worked for him but works wonders for some. I would keep on at the doctors if you think she is in pain though, colic seems to me to be something they use to brush off mums until things make themselves better and gaviscon doesn't work on all reflux babies. Trust your instincts!
28/09/2013 at 21:14
We had this, colief really helped, but was quite expensive, eventually got it prescribed.
So sorry you've had a rubbish time, and really hope this helps. The comfort milk did my LO so much good, about a week in, she was so different with the aptimal comfort and colief. After months it turned out she was lactose intolerant though is just be wary it might be a sign something is lurking. The comfort formula is 60% less lactose and the colief broke it down further hence it helping until we reached weaning and had then more lactose. Getting way off track but, try the colief, good luck. You have my thoughts, those nights of relentless crying are awful.. The infacol is ok too, keep that up, we gave two doses per feed, takes about a week fort hat to get into their system too.
28/09/2013 at 21:16
In terms of other advice, accept the crying may. Be here a little while longer, go out, don't be embarrassed, and don't try and cope alone. If it gets too bad stick some ear plugs in, you'll still hear it,but not as loud x
28/09/2013 at 21:28
Thank you for your replies. It's the crying that's killing me - I know babies cry but it just upsets me so much when she does, especially when there isn't much I can do. I'm really hoping that once the infacol and comfort milk are a bit more established she may settle a little. If not, i will definitely be back down the docs and think I will ask to try colief. I may be posting several times in the meantime when it all gets a bit too much x
28/09/2013 at 21:31
I'm always wary when a baby is shrugged off and sent home with colic.
I was branded a paranoid first time mum and told 'babies DO cry you know' by Henry's gp. Turns out after getting treatment for colic, reflux and some pretty strong drugs later, researching myself and trips to a&e, found it to be a milk allergy. We tried various different milks and ended up on a specialist milk neocate.
You know if something's not right, you're baby's voice, keep on at the GPS. It took us till he was 10 weeks to get the neocate, they do drag their feet if it isn't 'just colic'
28/09/2013 at 21:33
And hugs for you. It's soul destroying and you feel at a loss but IT WILL PASS, even though it feels like its for eternity it's not xxx
28/09/2013 at 22:09
Thank you Missus S. Not getting ahead of myself but how was your sons milk allergy diagnosed. I think one of the hardest things, apart from having your baby scream and you not be able to do anything, is all the trial and error.
28/09/2013 at 22:48
Are anti-colic bottles worth the money? Has anyone tried and had success with them? Which ones did you use? Also, did anyone find swaddling their baby helped at all?
28/09/2013 at 22:55
Get a cuppa its a long story...
No testing done, all trial and error. His symptoms were that of silent reflux, so after ruling out lactose intolerance with lactose free milk, (myself, the dr didn't want me to try the milk), we started on gaviscon which just made him incredibly constipated so we had to stop it. The gp wouldn't prescribe anything else until I rang her begging in tears as he was screaming and writhing and jerking in agony. It's not on. Got prescribed omeprozole which is the daddy for reflux apparently. it didnt even touch his synptoms. I tried aptamil comfort which has less lactose and partially broken down milk protein. Didnt help. I ended up in a &e with him at 3am as I didn't know what else to do, just so I could see a paediatrician. They agreed with me that it could be a milk allergy and prescribed aptamil pepti which is hydrolysed. The milk protein is extensively broken down. Still didn't help. After watching him get worse and feeds decreasing, weight not gaining, again ended up at a & e in the middle of the night in desperation. They prescribed neocate and we've not looked back. Neocate has no milk in it whatsoever (cows milk). It's made from amino acid so is for the severe allergies. Which tells us he has a severe milk allergy. His feeds increased, although he's never taken much in one go, cradle cap disappeared, he would lay flat on his cot, mucusy noise in his throat went, and all 'reflux' symptoms went.
28/09/2013 at 22:57
I bought dr browns as I thought it worth a try. Didn't help us but obviously I know now why it wouldn't have.
28/09/2013 at 22:59
When you say did swaddling help, is she not comfortable laying down, or squirming, unsettled? If so that's the symptoms of silent reflux (which just bear in mind is often cause by an allergy, see above). Dot want to be so pessimistic just want to make you aware in case you need the ammo to go to your dr x
29/09/2013 at 08:22
I'm totally confused because the first doc said she had reflux but the second said it was colic not reflux and she kind of has symptoms of both. Its usually the afternoon/early evening she has her unsettled periods and won't settle. She writhes around like she has wind still but nothing will bring it up. She also has been a bit sick after feeding but not always and not a lot. She constantly has her legs pulled into her chest and goes very red in the face. I went to the docs to say the gaviscon wasnt working which is when theu when they decided it was colic and was told I had to try infacol for 7-10 days before going back. I thought with the comfort milk being thicker it would help either way (fingers crossed) Its this trial and error and not knowing for sure that makes me feel so helpless!
29/09/2013 at 08:52
We tried Dr Brown bottles to help with the wind issue that you describe. They did help so we bought the anti colic MAM set which were still using now and love! We like missus S had a lot of trips back and forth. I know missusS in real life and when you put my E next to her H their symptoms were the same, but missusS LO had them on a whole other level if that makes sense. E was bad, she was fine first thing in the day but by the 3pm bottle she'd howl and scream until bedtime. Where's missusS little one would scream pretty much as soon as the bottle went to his lips and he took a sip of milk. I think that's the difference between allergy and intolerance made clear. Both were awful but missusS had it constant whereas my E got worse over the course of a day and as she took on more formula.
In terms of handling the crying. I tried massage before she'd start as it was like clockwork. It didn't really work but my E won't tolerate laying on her back so was bound not to. In the end holding her close and shh'ing or singing helped and a bath together with skin to skin too. It doesn't stop it but made me feel better. I remember my absolute panic so clearly now on the first night she did it. Awful.
In terms of diagnosis, for us, we got by on the formula and colief until we started weaning and introducing more lactose. Then we had three weeks of constant green poops, changing nappies 20 times a day on a bad day/night. Eventually my health visitor stepped in.
Other symptoms were terrible dry skin, spots in the early days, cradle cap which wouldn't go away (still have it at 9m), and the wind rumbling in her tummy. Reluctant to lay down too which we got round by propping up the crib with a towel.
29/09/2013 at 08:56
Henry was never really sick which is why I was at first convinced It was silent reflux. Stay strong, you'll both get through this whatever it is. Don't let them dismiss it as colic if you believe it's more
29/09/2013 at 15:59
Little Madam, your E sound very similar to my little girl. She definitely gets worse during the course of the day. The symptoms sound really similar too. I had just thought the spots on her cheeks were normal milk spots. I was looking at those Mam bottles in Argos as they're on offer so might give them a go too - anything to ease her, poor love.
Thank you all for your help and support - it's good to know I'm not on my own
29/09/2013 at 20:17
We do love them, also another symptom which I forgot, her poop smelt vile, horrendous, cleared a room, made my mom physically sick during one explodapoop moment. Very very fishy! (Put me off canned salmon since). That's gone since we started on lactose free milk. Do shout if we can be if anymore help. And buy chocolate.. Lots of!
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