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13/08/2013 at 20:03
Which would you recommend and are any prescription only? Has anyone successfully treated reflux just with this formula? (Or by mix feeding which is what I'd be hoping to do).
I'm struggling with S' reflux, the ranitidine didn't touch it, he's been awful on it and the gp didn't want to prescribe anything stronger. Eventually I got a gaviscon prescription (helped a bit before, mainly with sickness but not brilliant.) I'm wondering if mix feeding is a better solution but am so confused about what would be best.
13/08/2013 at 20:28
The best we found non prescription was hipp organic. Aptimal comfort was ok, at least much better than sma or normal aptimal. My gp refused to prescribe formula. Have they referred you to a pediatrician? X
13/08/2013 at 20:29
Unless the reflux is caused by an intolerance the formulas are just going to be thickened which is what the gaviscon does if I'm not mistaken. I have heard good things about Enfamil AR but not tried it myself. I've only tried the c&g one and think it did help but F is cmpi so caused other symptoms.
13/08/2013 at 20:35
You can get Aptamil Anti Reflux off the shelf now (different to Comfort which is more for colic). Didnt seem to make a lot of difference really. I have half a pack if you wanted it. I am in Kent....
13/08/2013 at 21:01
Enfamil AR (prescription) was fantastic for Zoe. We bought a tin over the counter to trial it first and then once we could show the GP it worked were prescribed it. I have just tried it for Orla (it was £6.33 for a 400g tub) but while it did resolve the reflux stuff it has made her very very constipated.
13/08/2013 at 21:03
We mix feed with enfamil AR. He's also on ranitidine and domperidone. We started all 3 at once so couldn't say which worked but in general he's really comfortable now. Still sick at least once a day but that bothers me less than the obviously pain.
He's only on one formula feed a day. I don't think tw mix feeding will help the reflux when you BF to be honest as that milk will still be digested the same as when not mix feeding.
Domperidone is pretty widely prescribed I think
13/08/2013 at 21:51
Thanks a lot everyone.
We haven't been referred, no. Gp's suggestion was that we do nothing, let him vomit after every feed and wait for him to grow out of it. I wasn't so keen on this myself. He said there's no evidence to suggest the sickness and acid does babies any harm and it's completely different to if an adult had been sick for the last 7 weeks - I had said it wouldn't be acceptable to let an adult be sick and uncomfy for that length of time.
Sam is gaining weight very well - he's 16lb at 11 weeks but I feel that's made the gp pretty dismissive. I know it's important but it doesn't mean it's ok for him to be so sick and full of coughing and spluttering.
I mentioned domperidone but he said its anti sickness, not for the acid and he isn't keen for him to have it so young. He said he would research further tbf to him but I left feeling like some crazed mum intent on drugging him up. He commented on how happy and content he is but again, does that mean he's ok if he's not crying when sick or swallowing back acid?
I see what you mean about mix feeding alone, guess there's little point doing it without med as well or going completely ff. Was thinking the thickening formula would be 'healthier' than using gaviscon but I'm all muddled up about where to go really.
MM That's really kind, thanks but I'm Nottingham so a bit too far!
If we were to try entemel AR do I need to buy/order from a pharmacy or is it a supermarket shelf job?
13/08/2013 at 22:34
If you are going for the Enfamil AR you will need to order it in to a chemist, definitely won't get it in the supermarket and most chemists won't have it in stock either.
It is mad how different GPs view things, and I do think a lot of it is their own personal experiences too. I have been very very lucky to have a sympathetic GP with both Zoe and Orla, although our surgery will only prescribe Gaviscon and if that isn't successful refer you to the hospital which means that a much bigger range of treatment is available.
14/08/2013 at 05:06
Thanks JB, will talk to our local one about ordering a jar I think, it's got to be worth a try.
Agree the difference in how Gp's view and treat it is ridiculous. Even within our tiny practice of two Doctors, the other is more sympathetic and seems more knowledgable, but unfortunately on holiday for two weeks. I guess they are shaped by their own experience though, he has kids, is very nice and friendly with Sam, and clearly thinks not medicating him is the better option. I just can't get past the feeling that leaving him be is quite cruel.
14/08/2013 at 06:32
Lamby I ordered mine online from chemists direct...
I've got a nearly full tin here that your welcome to try.. Although I imagine the postage would be nearly as much as the tin if you order a new one!
It didn't work for us as the constipation really upset Henry... We are doing well with gaviscon now thankfully..
14/08/2013 at 07:44
The two GPs I see have both had children with reflux themselves which is massively helpful!
Too young for domperidone? Big S was still only about 35 week gestation when he started on it!
14/08/2013 at 11:58
Bexy that's really kind of you but probably right about the postage! Glad H is coping ok on gaviscon, does he still get a lot of silent symptoms and does he seem in pain? I'd describe S as more as finding the acid more unpleasant than painful as he doesn't cry but it's still not what we want for him of course.
WH - I know right? Knew from here, and a paediatric nurse I know that it's used for young babies. Will be interesting to see if he does get back to me though I suspect he won't!
Think I'll give the gaviscon a go with just exp milk - challenge in itself with his frequent feeds and see how we go for a week before either trying entamil or booking with the other Gp.
14/08/2013 at 12:46
I can tell you now that your GP is talking bollocks and the acid can do harm as it can erode the airway. Tell him to look it up. Reflux can also lead to aspiration and respiratory problems.
If ranitifine doesn't work the next choice of drug is omeprazole. N was on this for a bit and it worked wonders. We're going back to ranitidine, we were never given domperidone. GPs are very good at saying oh they'll grow out if it, which is true but sometimes not until a year. N is 18 months!
14/08/2013 at 13:02
LLL - thanks for the info, that's bloody scary, we had no idea. Is the respiratory links due to the coughing and snorting? Gp said it's just a matter of things maturing and no evidence it causes any harm at all! We just want some informed, consistent advice from him but on reflection I now feel completely fobbed off.
14/08/2013 at 13:04
Lamby...he did stlll get symptoms at first but it seems to get better all the time...all we get now are occasional hiccups and lots of grunting in the early hours...but he seems much happier and wakes everyday with a smile.... I am also using infacol religiously on the advice on the gp so that may be helping too...
Hope things work out....
14/08/2013 at 17:51
That's great Bexy, really glad to hear his symptoms are getting less and less :)
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