Pregnancy & Birth Clubs <
05/05/2012 at 11:16
Hi everyone, I am new to this forum, my aim is to raise awareness of HELLP syndrome, a rare pregnancy complication that can be fatal unless treated in time, it is a variant of preeclampsia. I experienced this recently and had to give birth at 16 weeks to our baby girl..... H- haemolysis (the break down of red blood cells) EL- elevated liver enzymes LP- low platelet count It is a combined liver and blood clotting disorder and the only way to treat the condition and save your life is to deliver the baby..... At 15 weeks pregnant I started with a pain in my lower chest just below my ribcage that felt like indesgeation and heartburn and was uncomfortable to eat at times. I ‘got on with it’ as I thought it was just pregnancy, although it kept me up all night in pain, I’d had a migrane too a few days before and was moaning to my husband that the 2nd trimester was proving to be far worse yet everyone had told me it gets better in the 2nd. After days of feeling unwell I went to A&E as the out of hours doctor suggested . They told me I had a urine infection. I spent the next 4 days still in pain and feeling unwell. By the friday I had blood pressure that was through the roof and protein in my urine. I was referred to hopsital where the next day I was diagnoised with hellp syndrome and told that to save my life I had to give birth to our baby at 16 weeks, in the way an expectant mother would full term. I had no choice, I would have died otherwise. Since the worst experience of my life I have done much research and found there is hardly any info on HELLP syndome and would like so much to raise as much awarenss as possible. I was lucky they caught it in time. The hospital where we live say they’ve never known it to happen this early. It usually happend in the third trimester and NHS direct say it doesn’t and cannot happen until at least 20 weeks. I am currently in the process of writing to the cheif executive to have this changed and hopefully get more info available which will make pregnant women more aware of the symptoms that could potentially save their life! My life was saved but it took a while to come to the conclusion it was HELLP due to the fact that it ‘never happens this early’ well it can and it did! The symptoms to look for are- HIGH BLOOD PRESSURE AND PROTEIN IN THE URINE PAIN LIKE INDEGESTION OR HEARTBURN IN THE LOWER CHEST UNDER THE RIB CAGE UPPER BACK PAIN BETWEEN THE SHOULDERS HEADACHES AND VISION DISTURBANCES NAUSEA OR VOMITTING THAT CONTINUNES TO WORSEN FLUID RETENTION- AND EXCESS WEIGHT GAIN GENERALLY NOT FEELING QUITE RIGHT.....GET IT CHECKED OUT! Please seek medical advice straight away, don’t ignore it, HELLP syndorme CAN BE FATEL IF NOT TREATED! Please support me and Join my facebook page- hellpsyndromeangels
20/03/2013 at 14:35
Just wanted to bump this message....I had an emergency c-section on the 28th of Feb at 31 weeks because I had pre-eclampsia and HELLP syndrome...it is a very serious complication and the more that know about it the better.
Our little man is in the SCBU and doing well, but had I not gone to the GP I might not even be here.
20/03/2013 at 15:28
Hi Claire, thanks for the message, I find it shocking how it is rarely heard of, hence my campaign for greater awareness! people are losing their lives and babies to this! I am so glad your little boy is doing well and I hope he continues to do so, all the best, kelly ( facebook- hellpsyndromeangels) xxx
08/04/2013 at 10:44
Kelsangel, have joined the facebook group.
Thanks for your support x
08/04/2013 at 12:18
Thankyou for raising awareness of this syndrome. When you read all the pregnancy books you tend to put any change of health down to the pregnancy rather than take action. This is my first pregnancy and any awareness of health related issues if valuable. I hope you are doing ok after your own personal experience of this condition. xxx
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