Pregnancy & Birth Clubs <
10/04/2014 at 09:46
hello all, i wanted to start this thread to offer support and a place to share experiences for anybody who has been through or is going through the confusing and frightening experience of a molar/partial molar pregnancy.
i recently had, what we thought was a "normal" miscarriage and we were told on the 01/04/2014 that our baby had passed away at 11+5 during a scan to confirm abnormalities with the baby that had been detected on an emergency scan the previous week which had been performed due to the fact I'd been bleeding for six weeks. we had been told our baby had a cystic hygroma (an enlarged nuchal fold) and an omphalocele (baby's abdominal wall was defective and internal organs were developing externally) and that baby likely had turners or edwards syndrome. I'd had a tablet on the tuesday the 1st of april to shut down the placenta and begin the "medically managed" miscarriage and on friday the 4th we went to hospital to have a pessary to induce contractions and bring our sleeping baby into the world.
within ten minutes of the pessary being inserted i began to get pain. within an hour i was in agony and getting strong contractions every 50 seconds, i delivered our little boy and the pain should have subsided but it didn't, it got worse. i ws bleeding profusely and it kept getting heavier and heavier after a few hours we were told the placenta must be stuck and was causing the bleeding and pain. within an hour of being given an injection to make my uterus contract more i delivered what looked like a large sea sponge, whitey yellow on colour and almost had a sea weed appearance with bubbles or cysts. this is when the nurses started to panic and i was told I'd need surgery as they suspected I'd had a partial molar pregnancy and that my placenta was abnormal. after being taken to theatre the surgeon told me there was a huge amount of "placental tissue" removed and it took them a while to remove it and stop the bleeding and that the tissues were now being sent off to histology to confirm molar pregnancy. they started talking about the possibility it could be cancerous and I'd need follow up for 6 months minimum with a specialist hospital. i wasn't really listening as all i could think was "I've just lost my baby WHY are you telling me this now"
my grief almost instantly halted, the tears for my lost baby stopped and i was filled with a new feeling, fear!!! pure terror actually. i kept thinking "all i wanted was a baby how can something so pure and wonderful turn into cancer!" and i kept and keep asking myself "how did nobody notice this mass in m womb on the four scans I'd had" I'd had ALL of the symptoms of molar pregnancy how did nobody know? it is rare, apparently happening to just one in fifteen hundred ladies a year in the uk but rare doesn't mean it DOESN'T happen!!
i would like to share some facts I've found on mp and also a list of symptoms I'd had in the hope it will help anybody who is going through the same thing as I've found information on the internet is more clinical than personal and going through mp is a very lonely and frightening time and whenever you tell friends and family about it their blank expressions and "oh you'll be fine" comments REALLY don't help when inside you're screaming and scared to death. here's a list of the symptoms i had...
bleeding and af type pains from 5 and a half weeks past lmp. it was very dark brown almost black from the beginning. it started a week or so after my bfp and at times got heavier with some red almost orange coloured blood. i never passed any clots. the bleeding got heavier and the pain got worse everytime i had a bowel movement.(the classic and main symptom of mp)
i started showing quite early on, from around 7-8 weeks i had a visible swelling in my lower tummy and constant pain in my cervix and af type pains
10/04/2014 at 10:05
my blood loss was very dark brown almost black in appearance which is the classic and most obvious sign of a molar pregnancy.
my mood swings were HORRENDOUS from before i even got the bfp. id be crying like the world had ended and the next minute i felt murderous (extreme mood swings and pregnancy symptoms like extreme nausea and fatigue are also symptoms of molar pregnancy)
i suffered insomnia from four weeks i was exhausted all day but just couldn't sleep. another symptom of molar pregnancy.
i had severe and profuse sweating from around 4-5 weeks. i literally pumped sweat from every part of my body even my arms and legs. another symptom of molar pregnancy.
no matter how hungry i felt, even with a loud grumbling tummy i couldn't eat more than a mouthful without feeling full and wanting to be sick. and struggling to keep even fluids down.
the abnormalities found in the baby are also a sign of partial molar pregnancy and are caused by the baby having too many chromosomes.
in a partial molar pregnancy the egg is fertilized by two sperm and instead of twinning a single baby devlops with 46 paternal chromosomes instead of the usual 23 and 23 maternal chromosomes meaning the baby has a total of 69 chromosomes and will have severe abnormalities due to it's uneven make up. in a complete molar pregnancy the an egg which has lost it's maternal dna or "an empty egg" is fertilzed by a single sperm but the sperm then duplicates it's own dna to make up for the missing maternal dna and no baby develops only the cystic molar tissue.
mp and pmp are rare happening to one in fifteen hundred women a year in the uk and there are only three specialist hospital in the uk who deal with these types of trophoblastic diseases. one in dundee one in sheffield nd one in london. you will have 6months of urine and or blood samples which are usually done weekly or fortnightly to make sure your hcg (human chorionic gonadotrophin) levels are dropping and if they plateau or rise you will be classed as having an invasive mole or persistant trophoblastic disease and may require chemotherapy. chemo is almost 100% effective in these kinds of cancers but is completely necassary as the disease can spread so quickly, much faster than any "normal" cancer.
i hope this information helps even just one person to understand what molar pregnancy is as it can be such a difficult time for everyone involved and it's hard to explain to someone what's happening to you when you can't really make sense of it yourself!!!
please feel free to share your experiences either on this thread or by sending me a pm. i have gained quite a bit of knowledge about mp and pmp from various different sources and would be MORE than happy to share and support with anybody who is unfortunate enough to find themselves going through this too.
thankyou for taking the time to read this lengthy post and i sincerley hope it helps.
all the best
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