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06/11/2013 at 19:34
A (8 weeks) was prescribed nutramigen today as the paed wanted to rule out a cmpa. However, she will not drink it. Just tried her with some c&g anti reflux which is what she normally has but she's refusing that too. She's screaming none stop and will not settle. I know it's not an emergency but I don't know what else to do - the poor thing is starving but won't eat, knackered but won't sleep and I don't think I can leave her until the morning when I can phone her consultant. Not sure what a&e will do though?
06/11/2013 at 19:45
has she ever been like this before? is she still weeing and pooing? Only thing i can think a&e would do is pass an ng tube to feed her, but not sure they would, and rule out any more serious source of her pain. Maybe you call nhs direct and see the OOH GP?? Hope she settles soon, it's frightening when they're poorly, big hugs xx
06/11/2013 at 20:44
Thank you, her dad managed to settle her with a little help from the washing machine on a spin and I've just managed to get a couple of ounces down her thank goodness. Think I will leave the nutramigen until after I've spoken with the consultant
06/11/2013 at 20:56
P refused Nutramigen to start with. I started off replacing 1 scoop of normal formula with 1 scoop of Nutramigen and upped the Nutramigen by one scoop a day till she was 100% on it. Does that make sense? Have you tasted it - its foul so not surprised they dont want it!! It does take a bit of time to get them to take it. P would also get herself in a right tizzyif she was hungry, to the point she wouldnt feed. Hope it improves soon x
06/11/2013 at 21:06
A and E isn't a magic solution, BUT if you strongly suspect a cows milk allergy you can get prescribed specialist milk straight away without a long referral wait. The milk you've been given is definitely worth a try. It can take up to 2 weeks for it to fully work so be prepared.
06/11/2013 at 21:14
Thanks all. Personally, I don't think it's a cows milk allergy as she hasn't got any rashes/excema, and isn't as sick as I feel she would be had she an allergy but the consultant wanted to rule it out as the first lot of reflux medication they prescribed don't seem to be working. I don't think I'd like to drink it to be fair, it smells foul and I'm not brave enough to taste it!
07/11/2013 at 00:13
If you are concerned I'd contact the ooh gp I think people forget gps are ooh so you might have over looked this. A&e don't do formula prescriptions, they would refer you back to your gp if all was ok medically.
The ooh gp could give you an appointment, rather than waiting in a&e overnight
07/11/2013 at 04:16
Thanks all, we've managed to get her to drink some of her normal formula so feeling a bit better. Inwasnonly considering a&e as she wouldn't drink anything at all and it'd has been 7 hours since she'd last taken anything - I was worried there was something majorly wrong or that she was going to get really poorly through not drinking.
07/11/2013 at 08:49
How are things today hun? I know lots of mums on here have had to try several reflux meds before finding the one that works, me included. Which one have you tried? Gaviscon did nothing for us but we are now on Esomeprazole which works a treat. Reflux can be a major sign of CMPA so i guess thats their thinking but P's paediatrician only changed her milk as a last resort.
07/11/2013 at 12:31
Aw MamaD, i've had exactly that panic before when i've thought, should I just walk down to the doctor, because i physically couldn't do anything at all to calm her, and it was absolute hell :( I do hope today is bringing better feeding. I hear a lot about babies refusing that formula, so hope MMs gentle switch over might work. x
07/11/2013 at 17:35
Aww, thanks for your messages and for thinking of us. I spoke to the doctor today and she said to just try the increased dosage of the Meds first and then we will look at retrying the milk if/when it comes to it (which i really hope it doesn't!) She also said its quite a common thing that a lot of babies refuse it due to the taste. MM, I really like your idea of introducing gradually - the only thing is she's currently on reflux milk which is made up differently - will have to give that some thought. In answer to your question, she's currently on renatadine and domperidone but the doctor did say there were others we could try if they don't work. However, fingers crossed the new increased amount is the solution! x
07/11/2013 at 20:27
Aw chick, you've got my sympathy, I really hope this will be over soon and you'll figure what works. X
07/11/2013 at 20:29
Really hope it works for you. Reflux seems to be a huge guessing game and its just miserable. Here if you need to talk/rant xx
07/11/2013 at 20:55
Thanks both, it really helps having you here to "talk" to x
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