Pregnancy & Birth Clubs <
03/06/2014 at 21:48
I'm very lucky that J wasn't severely prem, however born at 35+5 we still faces some challenges.
we were discharged 24 hours after birth without any info.
she saw a peadeatrician at delivery who advised a feeding plan for the next 24 hours and that was it.
then before discharge she saw a peadeatrician who referred her for a hip scan
other than this we had no support, when we got home we found she could t suck or feed and this caused problems.
i know our care was poor from the hospital and they have acknowledged this. My question is should there be any further support for us? I know we will see the HV for development etc however after 6 weeks it appears we wont see her again until 1 year.
is that correct? At the moment im
not concerned about her development as she's only 5 weeks old, but I am aware there could be points along the way where we may need help or I may need some support!
i guess my question is what support was given to you and your prem babies after discharge?
03/06/2014 at 22:10
My oldest was a 34 weeker. He was in NICU/SCBU for a week before going home. Once home we didn't have anything extra I don't think. I used to go to baby clinic to get him weighed every month or so and they would adjust his age on the charts and check he was doing ok there.
03/06/2014 at 22:21
Thanks alaina, I just wasn't sure of the process .
03/06/2014 at 22:51
If you have any concerns at any point you can give HV a call or just pop in to a weighing clinic....you don't have to have then
weighed, they can be used simply to ask advice etc too x
03/06/2014 at 22:57
Ok I didn't realise that, there didn't seem to be anyone at clinic today other than the woman weighing the babies and she was rushed off her feet. Can you literally just cLl them for a question or query? Or does it have to be really urgent?
04/06/2014 at 06:38
Ah maybe the clinics vary area to area....Some may be weigh only. No it doesn't have to be urgent...remember concerns are what they are there for ones you CA.re has been transferred from mws to them. I've asked questions at weigh ins before....Some more trivial than others and it's never been frowned on x
04/06/2014 at 07:13
We were lucky that the hospital we were at had a support nurse and if parents wanted it she would visit the family at home for the first couple of weeks. We still see her! They also had an outreach team, although they were attached to nicu to help parents at home. The charity bliss.org.UK have support helplines and information booklets and they are all about premature and/or poorly babies. We were given lots of their leaflets but it wasn't appropriate for us. Don't know if they would be helpful to you. I agree with coco that you should be able to just call the HV for support and advice.
04/06/2014 at 11:09
My son was born at 33 weeks and spent two weeks NICU. He is now seven and doing fine. I do wonder though whether his dyxpraxia is connected to his prematurity. I would say go along to babygroups at SureStart if you have one locally, SureStarts should have support workers.Also can I echo Bunny in regards to BLISS www.bliss.org.uk, they have great info on the website. I would trust there info over and above that of a health visitor. My HV assumed that my son had wind as post feed he would pull his legs up and would tend to sleep curled up however after reading BLISS info this is quite normal for Prem babies as they findd it comforting.
04/06/2014 at 16:11
C was born at 27+0, and spent 12 weeks in scbu.
He saw his consultant until he was 2, but that was due to the problems he had, rather than just being prem.
My cousin had 30 and 33 weekers, and wasn't seen by anyone after they were discharged, apart from the usual visits all babies get.
I think it depends on each baby tbh, and whether they need extra support.
06/06/2014 at 05:37
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