Pregnancy & Birth Clubs <
09/04/2014 at 11:24
I'm sorry I very rarely post anymore but life gets in the way. I know a lot of newbies won't know me but some of the older members might and I know you asked to be kept informed. Our journey remains a complicated one.
J has continued with his respiratory arrests landing us back in hospital a couple of weeks ago. Last week he underwent surgery for reflux known as a Nissen fundoplication to see if this would stop them but alas it didn't. He lasted 3 days before another. He's now being investigated by respiratory physicians and ent to see if they can figure out a cause they are trying to rule out a tracheobronchomalacia at the moment. He needs a bronchoscope but currently isn't well enough to undergo it.
He on top of this has caught rhinovirus again and is currently ventilated on PICU. he's on high pressures and they're struggling to wean so I think we are in for a decent amount of time. J is now 6 months old and 14 weeks corrected. He is substantially delayed in his development due to the inordinate amount of time he spends ventilated and laid flat.
Any mumdrum vibes you have would be great fully received. Pictures added as always :) one of him currently and one when he's well x
09/04/2014 at 11:31
It's lovely to see you RCT. So sorry to hear J has been poorly again, I hope they can get to the bottom of it soon, he's a gorgeous little guy! x
09/04/2014 at 11:44
Oh the poor little thing. I hope he improves very soon and they get to the bottom of what is wrong with him.
He's a beautiful little boy x
09/04/2014 at 11:47
So sorry to hear he has been so unwell. I really hope you get some answers soon. You must be going through hell. Tons and tons of vibes for the little fighter.
Thanks for the update xxx
09/04/2014 at 11:49
He's such a gorgeous little boy RCT, sending him lots of get well soon vibes. I hope they get to the bottom of it all very soon. Sending you a hug x
09/04/2014 at 12:06
09/04/2014 at 12:26
Such a beautiful wee boy RCT. Sending you all the vibes i can that he get's better soon! xxx
09/04/2014 at 12:35
Oh your gorgeous lad! Thank you for posting back, I do wonder from time to time how he is although our Mumdrum paths didn't cross for long. Sending you masses of vibes, really hoping he's on top form very soon x
09/04/2014 at 13:28
All the vibes going RCT, I hope that J gets better and stronger soon. He's so gorgeous and what a little trouper for all he's going through.
I hope you are doing ok, I can't imagine how this must be on you and your family.
I hope he gets much better soon RCT and you can get your little man home again. Again I can't even imagine how busy you must be so thankyou for taking the time to post an update xxx
09/04/2014 at 13:29
You must be so proud of him, he's gorgeous. Thanks for updating us. I hope he's better soon xx
09/04/2014 at 14:30
Thank you for updating rct. All vibes going your way and I hope that they can figure what's going on quickly. He's a cutie xx
09/04/2014 at 15:27
Wishing you all the best for a speedy recovery and huhgs to get you through this. He's so cute!!
09/04/2014 at 15:58
RCT, he is just gorgeous! Sending all the vibes possible that he's feeling a bit better soon and that proceedures go well when they can go ahead. Thinking of you too and hope you're finding time to look after yourself too. Thank you for the update and look forward to another one when you can x
09/04/2014 at 16:12
Rct its lovely ro hear from you even though the updates are not as we would all like to hear, he is absolutely beautiful and I am sending you as many vibes as I can, may god bless your gorgeous little soldier xxx
09/04/2014 at 19:21
Lots of vibes for your lovely little chap, sorry he's been poorly x
09/04/2014 at 19:24
Thank you for updating us RCT, what a beautiful little boy you have and I'm sending all the vibes I have for him to be better asap xxx
09/04/2014 at 19:28
He's a cutie pie! Get well soon vibes xx
09/04/2014 at 19:48
So sorry to see that J is poorly again :( I feel so much for you all and just welled up reading your post. He is so gorgeous RTC, and I hope so much that he improves soon and feels well and as comfortable as possible in himself in the meantime. Thinking of you all and sending many vibes x
09/04/2014 at 20:30
He's such a cutie :) thank you for taking the time to update us, it's great to hear from you although I wish things were better for you all. Sending you and your little man lots of vibes. I hope they get to the bottom of it all soon x
09/04/2014 at 20:42
Continues below ad
with our partner Childcare.co.uk
Nice to see you! Please do nose around, sign up and join in.