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03/02/2015 at 11:41
03/02/2015 at 11:43
I had included paragraphs but MD doesn't seem to like them!
03/02/2015 at 13:17
What a massively tough time you must have had - and still be having - I'm so sorry to hear of your little boy's heart problem. You and your H sound amazing and very strong and brave to have done so much soul searching and make a pretty impossible decision, but it's wonderful that you have reached a point you are happy with and I hope so much that things go as well as they possibly can for Harry and his treatment. He is already a very lucky boy to have such dedicated parents. Sending big hugs xxx
03/02/2015 at 13:31
Oh Claire Lou, I'm so sorry to hear about Harry's heart problem; I think you both are inspiring in reaching the decision you have made. I'm sending tonnes and tonnes of vibes in advance for you, your H and your little boy. xx
03/02/2015 at 13:35
Sorry to hear your news. Wishing Harry and you all the best for the coming months. xx
03/02/2015 at 13:37
Oh Claire - I'm sorry to hear about Harry's heart problem, I'm glad you've had the right support to come to that decision, I can't begin to imagine what you went through. You always have our support and I'm glad you know that. So many vibes heading your way, and much love to you all. We're rooting for you Harry. xx
03/02/2015 at 14:09
I felt so sick when I saw the title of this post so sorry to hear about your little boy but I'm glad you and your H have come to a decision you are happy with. I can't begin to imagine what you are going through but you know you have all our support. Sending every vibe I have to you, your h and little Harry xxx
03/02/2015 at 15:41
Claire I don't know what to say. You've fought so hard to get to this point and it seems so unfair that this has happened. I'm pleased that a visit to Birmingham Childrens hospital has helped you realise there is hope and I'm sure Harry will be a total fighter if he's anything like his mummy and daddy. Please keep us updated when you can and we will all be holding your hands every step of the way xxx
03/02/2015 at 15:49
I'm so sorry that you've been going through such a turbulent time, incredibly hard decisions to be faced with. Sending all three of you all the love and good vibes xxxx
03/02/2015 at 17:33
Oh claire I am so sorry to hear your update.
However I have no doubt that Harry has got amazingly strong parents that will help him through this.x
03/02/2015 at 20:45
So sorry to hear this Claire Lou, what a terrible decision to face. You've obviously given it so much consideration and I'm glad you've made a choice you're happy with. All the best for the surgeries, having strong, loving parents around him will make all the difference to Harry I'm sure. What a gorgeous name you've chosen too xx
03/02/2015 at 20:52
I am so sorry to read this update Claire but thank you so much for sharing it with us. I often think about you and have been wondering how you are doing....
I can't imagine how hard it must have been to face those impossible options and having to make such a difficult decision. I hope that you can get all the support you need over the coming months and I wish you all the vibes, courage and strength that I can muster. Does the charity have a support group that you can join?
I hope that things go as well as possible with Harry's treatment. Please come back to update us if you can.
Lots of love X
03/02/2015 at 22:23
I'm really sorry to hear this hun it must be heartbreaking for you both. Sending lots of healing light for you, hubby & baby Harry xxx
04/02/2015 at 08:54
Thank you for all of your lovely replies. I will keep you all updated with his progress xxx
04/02/2015 at 18:23
Cl I can't add anything other than I am sending you massive cuddles, what a brave decision you have made. You your hubby and littl Harry are in my thoughts and prayers xxx
09/02/2015 at 09:49
Claire, I've said it before but I'll say it again - I think you're incredible. You and H are so strong and brave, I cannot imagine how difficult a decision this must have been. Harry is a lucky little boy to have parents as wonderful as you guys. Xxxx
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