Pregnancy & Birth Clubs <
29/03/2014 at 18:48
hi ladies, i had an emergency scan two days ago due to bleeding for six weeks which showed my baby has an omphalocele which means it's abdomonal organs are growing on the outside of his stomach rather than internally. also it has cystic hygroma which is a fluid filled sac or sacs going from it's head right down its spine to its little bottom. we were immediately referred to a specialist fetal medicine unit and have our first detailed scan on tuesday to determine just what these problems could mean for our baby but have been told it doesn't look good. we've been warned it could be turners syndrome which is a devastating disease in it's true form or edwards syndrome which will mean if my baby survives birth at absoloute best it may live until it's first birthday but no longer.
has anybody else had a baby with a chromosomal abnormality and what was the outcome for you if so. i would HUGELY appreciate anybody sharing their stories, I'm losing my mind with worry. thankyou in advance, chloe xxxxx
29/03/2014 at 18:50
29/03/2014 at 19:20
thankyou puddy, i know I'm fighting a losing battle and the chances my baby will survive are virtually nil, but it's killing me. I'm just sitting here knowing there's something wrong with my baby and there's not a thing i can do to save it, it's soul destroying. how are you hunni? i hope you're out of hospital now and all is well. with you bothxxxx
29/03/2014 at 21:14
Thinking of you hun , there are no words to describe how much I wish you a positive outcome , you have been through so much already , hope you are as ok as can be expected , n you are getting lots of support at home , sending you a big hug n lots of best wishes x x x
29/03/2014 at 23:47
thanks eve, you're so very lovely, it's all a bit of an emotional rollercoaster at the moment but I'm trying to keep on track xxxx
30/03/2014 at 07:19
sorry wanted to put a longer post on yesterday but was shattered. im out of hospitak and all is ok.
all i can say is stay strong and wait and see. its not the same i know but ive a friend who found out in pregnancy her little boy had a heart problem and the diagnosis was awful to the point were she didnt but baby stuff when he was born he was so strong and had surgery and fought like a trooper. he was home by 8 weeks and you wouldnt know what he has been through. so i guess miricals happen.
i work with kids that have various health problems and would like to reasure you that they can have a lovely life even if its not a long one. there is support out there but you may need to search for it.
31/03/2014 at 09:28
thankyou puddy, i can cope with disabilities etc i am disabled myself so i know having a disability doesn't mean the end of the world, it's just th fear of something life threatening that's eating away at me. I've felt more positive the last couple of days but i know that could all change at tomorrow's scan so trying not to be "jaded" as my dh thinks i am. it's wonderful your friends baby has overcome such scary complications and it gives me hope that miracles DO happen so thankyou for sharing hun i have all but convinced that tomorrow I'm going to be told everything is fine and all this will be just an awful memory. dh thinks I'm in denial, maybe i am but whatever it is it's helping me to survive at the moment so I'm embracing it and going with it xxxxx
31/03/2014 at 10:34
31/03/2014 at 11:56
i will hun an thanks again for your kind words.it means a lot especially when i know you've got your own worries and stuff going on at the moment hun. how are you Toay xxxxx
01/04/2014 at 05:37
if i remember its your scan today???
i really hope you get the best outcome hunni
ive been thinking about you
big big hugs and luck to you xxxxxxxxxxxxxxx
also im fine been awake since 4am just cant stay settled but my worries seem so very small compared to yours!!
01/04/2014 at 18:22
hi hunni, scan today showed baby died sometime in the last 24 hours. he measured 11+5 crl and i will have the first of two lots of tablets at eleven am to induce contractions as baby is too big for a d and c. we are heartbroken, rip baby loki. thankyou for your kind words and support hun xxxxxx
01/04/2014 at 18:27
01/04/2014 at 19:11
thankyou Samantha, hope you're ok hun xxxxx
01/04/2014 at 19:50
01/04/2014 at 22:27
yes Samantha, i had a cry before, a good snotty cry (eughh) as I've not actually cried, I've filled up and spilled a few tears but I've held them in and wiped them away as i wanted to look ok for the kids, i actually feel a little better for it as i really LET myself cry. but i feel a little stronger like what i let out in grief gained me back some strength, (that sounds stupid i know)but it's the best way i can describe it lol) I've had a firm word with myself and i know i need to be strong just a few days longer yet, it doesn't feel over yet as baby is still with me if that makes sense, once it's over in the physical sense i can concentrate on mending the emotional side for us all but for NOW i need to get over the "first hurdle" dh is here for me so I'm not alone which is comforting. we are definitively finding some solice in the fact any pain or suffering is now over. he can't have NOT been suffering. it gives me some peace, as do u and the other ladies on the site. your scan is on the ninth isn't it hun? I'm so looking forward to seeing a pic! xxxxx
02/04/2014 at 05:28
oh hun im so so sorry i really was hoping for a better out come for you! ive been thinking of you so much (hope that doesnt sound odd)
im glad you are finding strength, just from the your posts on here it seems you are a strong person.
we are all here if you want us.
05/04/2014 at 21:41
06/04/2014 at 06:04
thankyou sarah lou. xxxx
07/06/2014 at 23:59
19/06/2014 at 21:09
hi baby bailey. i read from your details you too had a baby with these "abnormalities" and i just wanted to reach out to you and let you know you are in my thoughts hun. i can understand that utter devastating shock when you're told "the news" and how everything else that follows afterwards just seems like a cruel insult to injury. i just cannot imagine you feeling the way i know i felt and not knowing somebody out there cares or understands what it is you're going through. please don't feel alone hun. i know you don't know me but i can relate to your situation and i don't want you to feel broken like i did. feel free to chat to me on here or you're more than welcome to pm me. love and healing to you hun
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